Table 5

Thematic list of barriers to genetic literacy, ordered by frequency within included studies

GroupBarrierStudy number
SystemUncertainty of provider responsible for ordering genetic testing or managing patients with elevated inherited genetic risk5, 9, 16
Ease of approval and availability of insurance2
Ease of referral to genetic counsellor2
Availability of genetic clinics3
Timeliness of referral appointments3
SurgeonLack of time for counselling during busy clinic4, 9
Little interdisciplinary contact9
Surgeon attitude regarding genetic testing and counselling14
PatientPatient compliance and attendance at genetic appointment2