Article Figures & Tables
Tables
Characteristic No. (%) of participants
n = 10Menopausal status Premenopausal 6 (60) Postmenopausal 4 (40) Relationship status Married 8 (80) Single 1 (10) Divorced 1 (10) AJCC stage I 4 (40) II 2 (20) III 4 (40) Surgery Unilateral mastectomy 4 (40) Bilateral mastectomy 6 (60) Reconstruction Immediate 4 (40) Implant 3 (30) Tissue transfer 1 (10) Delayed (tissue transfer) 1 (10) No reconstruction 5 (50) Chemotherapy Yes 8 (80) Adjuvant 4 (50) Neoadjuvant 4 (50) No 2 (20) Trastuzumab therapy 2 (20) Endocrine therapy 5 (50) Radiotherapy 5 (50) AJCC = American Joint Committee on Cancer.
Item No. (%) of participants How participant felt when making decision about contraleral prophylactic mastectomy Unsure about what to do 5 (50) Worried what could go wrong 4 (40) Physical signs of stress 4 (40) Questioning what is important 3 (30) Distressed/upset 2 (20) Wavering between choices/changing mind 2 (20) Factors that made decision difficult Lacked information about options, benefits, risks 4 (40) Lacked information on chances of benefits and harms 2 (20) Felt unsupported 2 (20) Felt pressure from others 2 (20) Information overload 1 (10) Unclear about what was important 1 (10) Lacked motivation/not feeling ready to make decision 1 (10) Lacked ability or skill to make decision 1 (10) - Table 3
Participants’ knowledge and expectations regarding benefits and risk of contraleral prophylactic mastectomy
Item No. (%) of participants Perceived benefit Reduced cancer risk 9 (90) Improved psychologic well-being 9 (90) Improved symmetry/cosmesis 6 (60) No more follow-up (imaging, call-backs, procedures) 4 (40) Improved longevity/survival 3 (30) Reduced/no change in complication risk/recovery 3 (30) Perceived risk Increased complication risk/recovery 6 (60) Lack of survival advantage 2 (20) Item No. (%) of participants* Methods Gathered information 8 (80) From health care providers 5 (50) From independent research 4 (40) Information content Chances of benefits and risks 7 (70) Options 6 (60) How others go about deciding 5 (50) Valuation/personal importance of benefits and risks 4 (40) Beneficial resources Information materials 8 (80) Health condition 8 (80) Surgical options 8 (80) Surgical benefits and risks 8 (80) Probabilities of benefits and risks 8 (80) Valuation/personal importance of benefits and risks 4 (40) Guidance in deliberation 3 (30) Counselling from health care practitioner 7 (70) Discussion groups of people facing same decision 5 (50) Format Booklet/pamphlet 8 (80) Internet 4 (40) Video 3 (30) ↵* Participants could choose more than 1 response.